A conference on Creutzfeldt-Jakob disease (CJD)
and other prion diseases for:

CJD family members
People at increased risk of developing CJD
Health care professionals involved in patient care or infection prevention and control

Key speakers from overseas will provide information on the following topics:

  • An overview of prion disease, clinical advancements towards treatments, diagnostic improvements and risk factors for CJD.

Our Australian experts and researchers will present on the follow topics:

  • Surveillance in Australia, challenges and advancements with diagnostics and genetic testing options and a history spanning 25 years.

Our research teams will provide updates on current research work in Australia and acknowledge the tremendous support provided by families via the CJDSGN.

Personal stories from family members who know the difficult journey called CJD are a big part of the day and this year we add the experience of a family doctor and her whirlwind journey assisting a patient and her family.

The round table session during the afternoon will provide time for one on one discussions with our presenters.


2.30pm- Genetic Family Meeting

This meeting is for genetic family members or those wanting to understand more about testing. A safe environment to ask questions and support each other.


8.30am – 5.00pm- All Day Conference

7.00pm- Conference Dinner

Accommodation is available for the conference at Jasper Hotel
Deluxe Queen (room only) $145 per room per night.

You can book this special conference rate online by including the code CJD2017 or by calling the hotel on 03 83272777 and mentioning the code.

Room availability is limited so please book early.

Key speakers

Meet our most valued speakers

Professor John Collinge

London, UK

John Collinge is Professor of Neurology and Head of the Department of Neurodegenerative Disease at the UCL Institute of Neuro

    Professor Robert Will

    Edinburgh, UK

    Robert Will is a professor of Clinical Neurolgy at the Department of Clinical Neurosciences, Western General Hospital in Edin

      Associate Professor Brian Appleby

      Cleveland, USA

      Brian Appleby is a neuropsychiatrist with clinical and research interests in prion diseases and young onset dementias.

        Associate Professor Gianluigi Zanusso

        Verona, Italy

        Gianluigi Zanusso is an associate professor in Neurology at the University of Verona, Italy.

          Professor Steven Collins

          Melbourne, Australia

          Steven Collins is a neurologist who is Director of the Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR)

            Professor Martin Delatycki

            Melbourne, Australia

            Martin Delatycki is Clinical Director, Victorian Clinical Genetics Services

              Jennifer Cooke

              Sydney, Australia

              Jennifer is a journalist, editor and narrative writer.



                This meeting is for genetic family members or those wanting to understand more about testing. A safe environment to ask questions and support each other.

                Event tickets

                Please RSVP or purchase tickets here.

                All Day Conference
                • Free for CJDSGN members
                • $60 for Healthcare Professionals (to cover catering)
                Book now
                Conference Dinner
                • 3 Course Meal
                • Softdrinks
                • (Alcoholic drinks available for purchase)
                Book now
                Genetic Family Meeting (Fri 17th Nov)
                • *Registration for family members affected by genetic CJD or other prion diseases and family members seeking advice on genetic testing.
                RSVP HERE

                For more information and support regarding CJD

                Head to the CJD Support Group Network website.

                Conference location:

                Jasper Hotel

                • 489 Elizabeth Street, Melbourne
                • stay@jasperhotel.com.au
                • 03 83272777